Colorado Spring 2018

Daniel and I are very excited to be going to Colorado for my 37th birthday in just a few days. Planning an adventure with our health issues is a little bit of a challenge, but we’re making it happen because we both want to live bigger. On this trip we’ll be flying into Denver, spending

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The Honey Pot

First I would like to thank MaddieSharafian on Tumblr for this perfect cartoon. I have for years been using the spoon theory to explain how my energy and pain levels effect me on a day-to-day basis. This cartoon does it more clearly & quickly than I could ever get the spoon theory across to anyone. I absolutely

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My EDS Careteam

Ehlers-Danlos Syndrome type hypermobility (or hEDS) presents many issues outside the party-trick-worthy bendable joints. This means that beyond my killer Mrs Incredible impression, I have complications above and beyond my joints. hEDS seems to affect my entire body, and each system is affected differently. This means I spend a lot of time and money at

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Elimination Diet

I’m about a month and a half into eliminating soy from my diet to try to fix my stomach. But I half assed it for the first two weeks… I see little to no difference. I’m doing this for 3 month, then I’ll add in another weird thing I can’t remember to eliminate. I’ll do

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Ehlers-Danlos Syndrome

I have a genetic disorder that occurs in 1 in 10,000 to 15,000 people. Turns out Daniel does too. Doctors often ask if we met in a support group. It’s called Ehlers-Danlos Syndrome Hypermobility type. This condition is rare (or rarely diagnosed), and many of the symptoms can be lessened with early intervention. I’m hoping

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