The original plan was flying out at 6pm Thursday, but I woke in the middle of an episode at 3am. That episode was about 7 hours of intense BS and about 12 or 13 total hours. We realized we weren’t going to make that flight pretty early and Daniel took care of rearranging our flight …
Daniel and I are very excited to be going to Colorado for my 37th birthday in just a few days. Planning an adventure with our health issues is a little bit of a challenge, but we’re making it happen because we both want to live bigger. On this trip we’ll be flying into Denver, spending …
Daniel and I had just come in the house from somewhere and we had NPR on the radio keeping Magnus entertained. As we were settling in I caught a few words from the program that was on that day. Those words have been sitting and stewing in my head for several days. Fresh Air’s Terry …
First I would like to thank MaddieSharafian on Tumblr for this perfect cartoon. I have for years been using the spoon theory to explain how my energy and pain levels effect me on a day-to-day basis. This cartoon does it more clearly & quickly than I could ever get the spoon theory across to anyone. I absolutely …
We love meat loaf. In the past we used 80/20 ground chuck so there was some fat to stick the loaf together, then we added Lipton Onion Soup mix, store-bought bread crumbs, and tomato sauce. With our new soy-free diet, Lipton’s and store-bought bread crumbs were out. Also, tomato can hurt an already sensitive stomach, so we wanted an alternative.
Ehlers-Danlos Syndrome type hypermobility (or hEDS) presents many issues outside the party-trick-worthy bendable joints. This means that beyond my killer Mrs Incredible impression, I have complications above and beyond my joints. hEDS seems to affect my entire body, and each system is affected differently. This means I spend a lot of time and money at …
I’m about a month and a half into eliminating soy from my diet to try to fix my stomach. But I half assed it for the first two weeks… I see little to no difference. I’m doing this for 3 month, then I’ll add in another weird thing I can’t remember to eliminate. I’ll do …
I have a genetic disorder that occurs in 1 in 10,000 to 15,000 people. Turns out Daniel does too. Doctors often ask if we met in a support group. It’s called Ehlers-Danlos Syndrome Hypermobility type. This condition is rare (or rarely diagnosed), and many of the symptoms can be lessened with early intervention. I’m hoping …
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