Finding you have a genetic connective tissue disorder in your 30’s kind of sucks. If you’re like me, a lot of preventable damage has already been done and can’t be fixed. If you find out you have EDS or Elher Danlos Syndrome Hypermobility here is a little advice that might help.
I’m “lucky” enough to have two of the catch all gastrointestinal diagnoses. Over the years I’ve been diagnosed and successfully treated several other gastrointestinal issues, but these are the ones I’m left with. My first piece of advice is to seek medical attention. My life is so much better after having everything possible treated –
The work I’m doing in therapy is in boundaries and lowering my stress levels. My Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and my Cyclic Vomiting Syndrome are exacerbated by stress. This makes controlling my stress levels and body response to stressors is extremely important. My last therapy appointment my therapist asked me to work on an idea