Living with Health Challenges || Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

My care team and I were functioning without all the relevant information about my illness until Covid-19 Long Haul started being reported. My good friend Myndi was unfortunate enough to end up with Long Haul Covid after getting Covid a few months before vaccines were available. It had been a bad flu for her, but …

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Living with Health Challenges || EDS

Finding you have a genetic connective tissue disorder in your 30’s kind of sucks. If you’re like me, a lot of preventable damage has already been done and can’t be fixed.  If you find out you have EDS or Elher Danlos Syndrome Hypermobility here is a little advice that might help. 

Living with Health Challenges | Cyclic Vomiting Syndrome & IBS

I’m “lucky” enough to have two of the catch all gastrointestinal diagnoses. Over the years I’ve been diagnosed and successfully treated several other gastrointestinal issues, but these are the ones I’m left with.  My first piece of advice is to seek medical attention. My life is so much better after having everything possible treated – …

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Living with Health Challenges | Finding Peace

The work I’m doing in therapy is in boundaries and lowering my stress levels. My Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and my Cyclic Vomiting Syndrome are exacerbated by stress. This makes controlling my stress levels and body response to stressors is extremely important. My last therapy appointment my therapist asked me to work on an idea …

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International Travel

We’re preparing to visit two continents in less than a month. Travel is not always easy with my medical issues and allergies, but we refuse to let that hold us back. One way I deal with my anxiety is making quotes on photos that I’ve taken. I’ve never been to these places, so I had …

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